The association’s video has to get 3,000 votes before Friday 12th May, at 12pm CEST
The ‘Asociación Marta y María CLN6’ is mobilising to get the 3,000 votes it needs in order to obtain €5,000 and the chance to compete for the best video of the year and the jury’s prize at the next Fundación Inocente Inocente gala on 17th May, at the Espacio Fundación Telefónica in Madrid.
The charity association ‘Marta y María CLN6’ has presented a video, sponsored by the actor Sergio Ayala Climent, businessman, unique speaker and star of the web series “La Hora De Los Hombres Medios”. In the video, Sergio Ayala explains the current cause for which the association is working, the Miglustat Challenge, which aims to pay for this treatment (Miglustat) for the eldest of these sisters, Marta, in order to give her more life expectancy and a better quality of life.
The video highlights the struggle of an entire province, Castellón, in favour of research and treatment for people with the rare disease suffered by Marta and María, Batten CLN6 disease.
Vote and help Marta and María!
